Imagine…sitting at the table with your family. Looking down at your plate and knowing that
is your last meal…
Imagine… feeling strong and healthy, running around carefree and loving….
Knowing that tomorrow you might not be because you have no food…
Imagine… smiling and loving, knowing that soon you will feel pain and
not want anyone to touch you.
Imagine… every food you provide for your child makes him extremely ill.
Imagine… being a little boy loving your family, to have it all taken
away because the formula that has kept you alive has now changed its formulary without
your mom, dad or doctors knowing. To be
left with no food.
Imagine… being a doctor and specialist and not knowing how to help this
child.
Imagine… being the mother or father of this child and how your heart ,
mind and spirit feels knowing that you cannot provide for your child, because
there are no laws governing medical formula changes without notifying or
solutions.
Imagine... being a little boy
and having no food, in a country that is supposed to be the richest and most
caring in the world.
Imagine not
being able to hold your child again…
This is our reality: In the
next month I will be going over Mack’s life and how FPIES and EoE has ROCKED
our world and sent us on a ROLLERCOASTER ride of a lifetime…
DISCLAIMER: The pictures used in this and all posts are property of Mack and family.
Please no copying or using his pictures or stories without written permission first from his parents.
