Celebrate TODAY

because you don't know what tomorrow will bring

 

 

 

Tis the season for SOCCER!! 

Both Mack and his sister, Alyssa, love soccer, wait...  LOVE Soccer. 

This will be Alyssa's 3rd year attending the Challenger Sports British Soccer Camp and Mack's 1st year.

Day 2 because we forgot the camera for day one...



Getting a game plan



 

Wow!!!  Look at him go...

Mission Accomplished!









 

 

 



Alyssa with her soccer face on.
 

 

We love how this camp work because they have the young ones with the older ones to help build a respect and a good team approach. 

Plus it gives our kids something else to do together and have fun.

 

Also and underlying message, is it gives Mack some normalcy and being with other kids his own age instead of in the doctor office all the time.

Yay for Normalcy!!!!

 

 

 

 

 

 

 

 

 

DISCLAIMER:  The pictures used in this and all posts are property of Mack and family.  Please no copying or using his pictures or stories without written permission first from his parents.   

 

 

 

Kid Time

A Good Day in the Life of Mack
We went to Story Land in Glen, NH and they had a blast.











Mack was having a good day so we decided to venture out into society and give him some "Kid Time"

Finally the first year I have gotten him to sit on the trunk to watch the spider come down..... despite what he is going through the kid still has spunk and energy.



Nothing like an old fashion

carousel ride with the kids.....   LOVE EM' 

 

 

 

Sissy, Mom, and Mack on the Carousel Ride



 



Mack playing a Mad
Scientist in the Loopy Lab

Mack on Dr. Geyser's 
Remarkable Raft Ride




 

 

 

 

A cool train ride at the end of the time to have his feed and

tour the park before heading home.



 

 

He was worn and tired (but so were we)

and it was so worth it!!!

 

 

 

 

 

 

 

 

DISCLAIMER:  The pictures used in this and all posts are property of Mack and family. 

Please no copying or using his pictures or stories without written permission first from his parents.   

 

 

 

New Doctors and New Hope....

We are trying to remain hopefully despite our ups and downs with Mack and his healthcare as well as his teams that we have had in the past.

We are approaching this new team with open minds in hopes that it will work this time.  We can not judge the new doctors based on how others have failed us in the past.  Always keep the light on in the room that you are entering, for you never know who is in the room.

These are hard lessons for adults to learn never mind explaining this to a 5-year old that is tired of not having food and living in pain for most of his life. 

Moving on and moving away from the old.... 
Hoping the old saying prevails that things happen for a reason.... Please God, let this be the reason.

DISCLAIMER:  The pictures used in this and all posts are property of Mack and family. 

Please no copying or using his pictures or stories without written permission first from his parents. 

 

I try to fix you............

When all the world is against us
I try to fix you...But I can't
So Please God ~ Can you fix him?

 

 

DISCLAIMER:  The pictures used in this and all posts are property of Mack and family. 

Please no copying or using his pictures or stories without written permission first from his parents.