New Year ~ New Hope

Last year was quite the rollercoaster ride for our family.  Lots of in and outs of hospitals, doctors, nurses, friends and family.  The one thing that has remain constant is the love and respect that we have for each other in our house despite one heck of a rollercoaster ride.



1.  Mack has been on the Tolerex formula now for well over 8 months and is doing very well on it - clean scopes and no reaction!!!  Yay, for a glimpse of hope, he made it to his 6th Birthday, which we didn't think was going to happen.

Sissy made a Ice Castle for my cake <3  Yummy!

2.  He also has been on cod liver oil to help fill the gap of the oil missing in the Tolerex and again, clean scope and NO FPIES reaction!!!! 
Yay for wonder number 2!!!!!


3.  And the best one of all is....   We have found Mack loving and caring team of doctors that listen and have helped him grow and thrive in the past 5 months!!!!  Forever grateful!

 

We still have a long journey ahead of us,

but the pluses outweigh the negatives and

there is a glimmer of hope that we have never seen before.

DISCLAIMER:  The pictures used in this and all posts are property of Mack and family.  Please no copying or using his pictures or stories without written permission first from his parents. 

Mack has found his safe food...

This has been the hardest thing we have ever had to face before in our
lives and do not wish this kind of stress and anxiety on anyone.   EVER!



The thought of loosing all food for your child and you have

nothing at all to provide your child is so unimaginable. 

 

To even explain it to another parent or doctor just seems

so delusional that we stopped explaining it. 

It was tearing our family apart never mind our sanity. 

 

It got to a point were even his "safe"  was making him sick.  It was time... 

We could not wait anymore for Elecare to help us.

We had to take a Leap...  A big LEAP!