Mack Attack ~ My EoE and FPIES Warrior

Mack has found his safe food...

This has been the hardest thing we have ever had to face before in our
lives and do not wish this kind of stress and anxiety on anyone.   EVER!



The thought of loosing all food for your child and you have

nothing at all to provide your child is so unimaginable. 

 

To even explain it to another parent or doctor just seems

so delusional that we stopped explaining it. 

It was tearing our family apart never mind our sanity. 

 

It got to a point were even his "safe"  was making him sick.  It was time... 

We could not wait anymore for Elecare to help us.

We had to take a Leap...  A big LEAP!







Mack on Elecare Jr. Vanilla

So JUMP...

For the past month we have been slowly building his system and

We have found these new foods are working for him.

With help from his doctors and friends (list is below):

 



Mack a couple weeks on new food regimen

 To the closest friends who were

able to deal with me through this process,

I am forever grateful.

 

 For those who could not stand me

I understand ~ I forgive you.   

 

 

The thought of loosing Mack and

never being able to hold him again,

I just could not accept it. 

I knew it was not his time... 

 

Thank you all for just being in this difficult time
with us and good, bad or ugly. 

We hope we can all learn from this and

help these kids establish "safe foods".

 

This is Mack now after the transition...

Mack on his new safe foods <3

 He is happy, thriving and trying to be a

normal 5 year old..



We still have  a lot of healing to do spiritually,

emotionally, and physically,

but we made it past this trial with a

little help from our friends <3 



A special thank you to all the families out there
known and not known, who have
prayed and cried with me night and
day, so Mack could find safe food. 
FOREVER GRATEFUL! 



**********************************************************


 

Mack's safe food:



http://manitobaharvest.com/product/94/Organic-Hemp-Hearts-5Lb.html







http://www.nestlehealthscience.us/products/Pages/TOLEREX.aspx







and http://organic3.com/gutpro/#infant

 

We don't advertise or get moneys for referring, but this is what has helped Mack to become stable.

 

DISCLAIMER: These pictures are property of Mack and family. No copying or use of pictures or stories are permitted without written permission from parents.